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  • To Add or Not to Add, That is the question.
    Many factors are considered by the Department of Health in any state to add a condition to the NBS list. Is it a disorder that could result in death or serious medical situation, will early treatment make a difference, is reliable testing available for the condition, and are follow-up tests available for this condition?

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  • My Newborn Screening Journey Into Advocacy
    My daughter, Bethany, was born a typical beautiful newborn, although she entered the world a month earlier than planned. We took her home to begin our changed lives from a couple to a family of 3. But after a few days home, we received a call to take her back to the obstetrics (OB) unit for a repeat newborn screen (NBS).

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