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  • Deadly Delays, But Not In Iowa!
    The Milwaukee Journal Sentinel published an article in November 2013 compiling states’ information about their newborn screening programs. It was reported in 2012, at least 160,000 blood samples from newborn babies arrived late at labs across the country, according to the newspaper's analysis of screening tests from 31 states.

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  • Timing Is Everything
    Newborn screening is an amazing program with countless benefits. Few public health programs have positively affected so many generations of Americans. Of all the various aspects of the program, there is one specific aspect that can literally be the difference between life and death: timing.

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  • Siblings of Children with Special Needs: Discussion
    Having a sibling with a genetic condition is hard for siblings who do not have a condition. Authentic family centered care and services focus on the whole family, involving all children, and not just the ones affected by a condition. It is never easy to explain to a child that their brother or sister has a genetic condition, but it is important to explain the condition to them early in their life. This discussion should be tailored to their age and more detailed information should be given when the child is ready. Below are a few recommendations on how to successfully have this conversation with your child.

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  • Siblings of Children with Special Needs: Emotions
    The siblings of children with special needs often experience a different range of emotions than their peers. Many times, their emotions are conflicting and change on a regular basis. The highs are higher, the lows are lower, and it is difficult to anticipate how they are going to react to their brother or sister’s condition at any given time. A common misconception exists that having a sibling with a special needs leads to a range of intense struggles throughout a child’s life.

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