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  • To Add or Not to Add, That is the question.
    Many factors are considered by the Department of Health in any state to add a condition to the NBS list. Is it a disorder that could result in death or serious medical situation, will early treatment make a difference, is reliable testing available for the condition, and are follow-up tests available for this condition?

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  • My Newborn Screening Journey Into Advocacy
    My daughter, Bethany, was born a typical beautiful newborn, although she entered the world a month earlier than planned. We took her home to begin our changed lives from a couple to a family of 3. But after a few days home, we received a call to take her back to the obstetrics (OB) unit for a repeat newborn screen (NBS).

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  • Deadly Delays, But Not In Iowa!
    The Milwaukee Journal Sentinel published an article in November 2013 compiling states’ information about their newborn screening programs. It was reported in 2012, at least 160,000 blood samples from newborn babies arrived late at labs across the country, according to the newspaper's analysis of screening tests from 31 states.

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