Family Experiences
Learn from other families, in their own words, what their journey has been like after a diagnosis. Their stories not only give us valuable insight into how they manage conditions, but also reaffirm that none of us are alone. You can also visit the Baby's First Test Youtube channel for family stories and guides to support your family through the newborn screening process. Do you have a newborn screening story you would like to share?
Billy Werner tells the story of her grandson, Lucas, who was born with Critical Congenital Heart Disease
Ashley Bricker tells the story of her son, Johnny, who was diagnosed with two newborn screening conditions. Johnny lives with MSUD and CF.
Ashley Bricker tells the story of her son, Johnny, who was diagnosed with two newborn screening conditions. Johnny lives with MSUD and CF.
A mom, Michelle Thomas, talks about finding out her son had hearing loss. She highlights the need for accurate communication about conditions.
A mom, Amanda Schneider, discusses how her son was quickly diagnosed with hearing loss and began early intervention.
A mom talks about her son's diagnosis with hearing loss. Thanks to newborn screening, he started early intervention and his family was connected to valuable resources.
Shannah Hudson discusses her daughter Emmalyn's diagnosis with Glutaric Acidemia Type 1. Thanks to newborn screening, Emmalyn's condition is being managed.
Megann Reames tells the story of her son's diagnosis with congenital hypothyroidism. He is thriving under the care of his pediatrician and endocrinologist.
Kay Kelly discusses her experience learning of her son's diagnosis with MCAD and learning about what that means.
Do you have a newborn screening story you would like to share? Let us know!
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