Pages in Submit Your Story

Submit Your Story

Thank you for choosing to share your story! It cannot be overstated how important it is for families in similiar situation to know they are not alone.

Tell us about your experiences and how they impact your family. Have theybeen challenging? Inspiring? What have you learned along the way? Your story can be as short or long as you'd like, though we may reach out to you for additional information

Files must be less than 2 MB.
Allowed file types: gif jpg jpeg png.
Mark here if you do not wish for your last name to be included with your story in any electronic or printed forms.

Terms of Acceptance:  

understand that my statement and my photograph and/or my child’s photograph are being included in Genetic Alliance’s collection of stories and may be used in Genetic Alliance’s publications, social media, website(s), and/or any other electric or printed forms, for the purpose of informing and educating the public about newborn screening. By submitting this information, I hereby grant permission to Genetic Alliance to use my statement, including: (1) my name (unless I checked the box for anonymous submission) (2) my picture and/or my child’s picture – including photographic, picture, and electronic images, and (3) my story – including any personal information enclosed in the story, as described above. I consent to the use of my statement and grant Genetic Alliance the right to copy, reproduce, and use all or a portion of my statement. I know that should I change my mind about granting permission for Genetic Alliance to use my photograph or my family’s story, I can contact Genetic Alliance at any time and ask that they be removed from the website.

By submitting the form information to Genetic Alliance, I acknowledge that I have read the foregoing, and I fully understand the contents.

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