Working with Family Advocates in Newborn ScreeningPublic Square #6Published September 20, 2017
On September 21, 2017, Baby's First Test hosted a webinar on how newborn screening programs can effectively collaborate with and support family advocates. During the webinar, Amy Gaviglio, MS, CGC from the Minnesota Department of Health discussed Minnesota's experience supporting family advocates, and Shanna Quimby shared her family's advocacy journey and her work through Gavin Flying for a Cure. You can watch the full webinar here.
After hearing Minnesota's and Shanna's experience working together, we want to hear from you! How can newborn screening programs collaborate and partner with families? What are the challenges that you've experienced? What have been the successes?