Learn from other families, in their own words, what their journey has been like after a diagnosis. Their stories not only give us valuable insight into how they manage conditions, but also reaffirm that none of us are alone. You can also visit the Baby's First Test Youtube channel for family stories and guides to support your family through the newborn screening process. Do you have a newborn screening story you would like to share?
Susan Mays shares the story of her daughter, Indie, who has Maple Syrup Urine Disease. Because of newborn screening, Indie received a timely and accurate diagnosis, began treatment, and prevented irreversible brain damage.
Ashley Bricker tells the story of her son, Johnny, who was diagnosed with two newborn screening conditions. Johnny lives with MSUD and CF.