Family Experiences
Learn from other families, in their own words, what their journey has been like after a diagnosis. Their stories not only give us valuable insight into how they manage conditions, but also reaffirm that none of us are alone. You can also visit the Baby's First Test Youtube channel for family stories and guides to support your family through the newborn screening process. Do you have a newborn screening story you would like to share?
Coco tells the story of her daughter, Reese, who was diagnosed with glutaric academia type 1. Now 13 years old, Reese is like any other teenager and could not be happier.
Shannah Hudson discusses her daughter Emmalyn's diagnosis with Glutaric Acidemia Type 1. Thanks to newborn screening, Emmalyn's condition is being managed.
Do you have a newborn screening story you would like to share? Let us know!
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