Tweets
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Baby's First Test | @BabysFirstTest | Follow | Next we have comments from @MDAnews discussing advances in therapies for SMA, DMD and other neuromuscular disease #ACHDNC #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Public Comments continue with a mom speaking abt emerging treatments for #SMA Spinal Muscular Atrophy #ACHDNC #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Now one of the most important times of the #ACHDNC mtgs - Public Comments. First up are comments on MPS conditions #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | The #ACHDNC approves Recommendation 3 to have studies identify at least 1 positive case (12 to 3) #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Dr.Bailey: 9 month timeline for evidence review, the lack of a funding source for pilots, etc lead to a high bar to add conditions #ACHDNC | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Lively talk abt the need for 1 case to be found when dealing w/rare disorders that may take years to find 1 case #ACHDNC #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Pres. of pilot study group's work to determine the data needed to add a condition to #newbornscreening by @sms722 of @NJDeptofHealth #ACHDNC | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Discussing the one case requirement for nomination of a condition to the recommended uniform screening panel for #newbornscreening #ACHDNC | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | An evolving issue in #newbornscreening is the incorp. of pilot studies nomination process - what is the minimum data for a condition #ACHDNC | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Timeliness 2.0 group has completed its tasks and related activities will be delegated to existing workgroups #ACHDNC #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Hi @rxrega @BabysFirstTest will be live tweeting the #ACHDNC mtg today and tomorrow #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | 4 new voting members: Mei Baker, Jeff Brosco, Annamarie Saarinen, Beth Tarini - state programs, bioethics, consumer, and pediatrics #ACHDNC | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | The #ACHDNC mtg has kicks off! #newbornscreening | 8 years 8 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | @BabysFirstTest is excited to launch the #newbornscreening public square! Join us Friday for an introductory webinar https://t.co/W3AzjvromP | 8 years 9 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Today is the day! Register for the webinar on Timeliness in Newborn Screening happening today at 1PM EDT! https://t.co/EqrQHxEJEA | 8 years 9 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Register today! You won't want to miss NYMAC's webinar on timeliness in #newbornscreening tomorrow at 1PM EST https://t.co/G6wHjdL9NT | 8 years 9 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Webinar on Timeliness in Newborn Screening is this coming Wednesday, August 10th! Join us! https://t.co/luJFauK4GC #newbornscreening | 8 years 9 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Register Today! 2016 @NBSTRN Network Meeting on September 8-9. https://t.co/EOM3Yr1Z7s #newbornscreening | 8 years 9 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | Watch video for the update on Zika in Florida: "Couples trying to get pregnant should get tested" #ZAPzika #zika https://t.co/M6Qc2y1BWj | 8 years 9 months ago | Reply Retweet Favorite |
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Baby's First Test | @BabysFirstTest | Follow | #TeamUSA swimmer overcomes #raredisease to compete this Sunday at noon! https://t.co/yJJMqEyxeN #olympics2016 https://t.co/9sYnkZlDIt | 8 years 9 months ago | Reply Retweet Favorite |
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