States Oregon

Conditions Screened

Oregon currently screens for 53 conditions

The Oregon Program

Each state runs its program differently, for more detailed information please visit their website here.

Download Brochure

View the Oregon Brochure »

What Conditions are Screened For in Oregon?

Hemoglobin Disorders

Lysosomal Storage Disorders


NBS Laboratory

Phone: 503-693-4100

Northwest Regional Newborn Screening Program
Oregon State Public Health Laboratory
3150 Northwest 229th Avenue, Suite 100
Hillsboro, OR 97124-6536
Phone: 503-693-4172
Fax: 503-693-5601

Follow-Up Program

Sara Denniston, BS
Newborn Screening Follow-Up Coordinator
Northwest Regional NBS Program
Oregon State Public Health Laboratory
PO Box 275
Portland, OR 97201
Phone: 503-693-4173
Fax: 503-693-5601
[email protected]

Early Hearing Detection and Intervention

Heather Morrow-Almeida, MPH
EHDI Program Coordinator
Office of Family Health
Oregon Department of Human Services
800 NE Oregon Street, Suite 825
Portland, OR 97232
Phone: 971-673-0268
Fax: 971-673-0251

Maternal and Child Health Section

Claudia Bingham
Office of Family Health
Oregon Health Authority
800 NE Oregon Street, Suite 825
Portland, OR 97232
Phone: 971-673-0253
Fax: 971-673-0250
[email protected]

CCHD Program

Claudia Bingham
Phone: 971-673-0253
[email protected]

Search Educational Resources

Looking for resources? Check out our Newborn Screening Education and Training Resource Center.


About Newborn Screening in Oregon

Program Overview:

As a new parent, you will receive a lot of information covering many topics. It is important that you pay attention to the newborn screening information provided about Oregon’s testing program. Newborn screening is a special blood test that can find rare conditions that some babies are born with. Most babies do not have these conditions. But if a baby does, the condition can cause brain damage or death if they are not treated early. None of the conditions can be cured. However, finding the conditions early helps your child’s doctor provide treatment guidance to reduce the effects of the conditions.

A medical staff member will collect a few drops of blood from your baby’s heel and put it onto a special filter paper. The lab in Oregon tests the blood to determine if your baby has one of these conditions, or not. To see a copy of the blood spot card used in Oregon click here. 

By state law a hospital, birthing center, or midwife must collect two sets of blood for every baby born in the state. The first set should be collected when your baby is 1 to 2 days old, or before the baby leaves the birthing center. The second set should be collected between 10 and 15 days of age. The birthing center will give you the filter paper for the second set. Take this to your baby’s doctor at their first visit after birth.

This test is important because it helps find conditions while treating the baby is most helpful.  Making sure your child is tested twice, once at the hospital and once at your child’s first doctor appointment increases the chances that the condition will be found early enough for treatment to help.

Make sure the phone numbers and addresses you give your baby’s doctor are correct so that your baby’s doctor can contact you if follow-up is needed.

How is Newborn Screening Paid for in Oregon?

The cost kit to test your newborn costs $80. Most medical insurance will cover this cost as part of the hospital bill.

No Oregon infant will be denied testing if a parent cannot afford it. If medical insurance does not cover the cost, a parent or health care provider may request a refund by sending in a “Statement of Fee Exemption” to the lab. The request must be given to the OHA within one year of the baby’s birth and the lab will issue a refund check. According to Oregon Administrative Rule OR ADC 333-024-0240, the statement must include the following:

The undersigned states that the parents of ________________ are unable to pay the fee for testing for METABOLIC DISEASES because of lack of sufficient funds.

(Parent’s signature)


Policies and Resources


All babies born in the state of Oregon must be tested. If a parent objects to the testing based on religious beliefs, they may choose to not have the baby tested. The religious objection must be stated in writing.

Support for families:

After learning that a baby has a genetic condition, families sometimes have questions about the possibility of increased medical costs. Fortunately, Oregon provides both short-term and long-term follow-up services for its residents with conditions found during newborn screening.

Oregon law requires all individual or group health insurance policies that provide coverage for hospital or medical expenses to cover the cost of care for conditions detected during newborn screening. The policy must cover doctor visits, testing, and medical foods. The insurance policy may require a deductible or coinsurance for the covered services.

A helpful resource for children and families is the Metabolic Program, located at the Child Development and Rehabilitation Center (CDRC) in Portland. The Metabolic Program at CDRC is the only one of its kind in the state and helps with finding and treating the conditions found with newborn screening. The program welcomes referrals at any age. Referrals are also welcome from any source including parents, educators, caseworkers, physicians, and other health/allied health care providers. Many families require a referral from their doctor in order for their insurance to cover the service; if this is the case, their bilingual administrative staff can help you with the process. For more information, or to initiate a referral, please call 503-494-8095 or 800-452-3563 or visit the CDRC website.

The Child Development and Rehabilitation Center, has offices in both Eugene and Portland, provides interdisciplinary clinical services for persons with developmental disabilities and other special health care needs. They also offer services for special health needs in Grants Pass, Klamath Falls, Medford, and Roseburg. They also have community programs in most Oregon counties. Visit the Child Development and Rehabilitation Center website for more information about specific programs or locations. Their Portland clinic can be reached at (800) 452-3563 or (503) 494-8095 and the Eugene clinic can be reached at (800) 637-0700 or (541) 346-3575.

Storage and Use of Dried Blood Spots:

Newborn screening specimens are stored by the Oregon State Public Health Laboratory for one year and then destroyed. Research requests for use of stored dried bloodspot specimens outside of the newborn screening program are subject to approval by the Oregon State Public Health Laboratory through the “OSPHL Use of Human Samples” process, appropriate Institutional Review Board approval, and Oregon Genetic Privacy Statutes.

Families may request that the lab destroy their baby’s specimen before the one year storage period by making a request in writing to the Oregon State Public Health Laboratory. Requests to return a specimen to the baby’s family must be done in writing through the baby’s medical practitioner.

To see a copy of the blood spot card used in Oregon click here.

Was this Helpful?

Your input helps us improve the site for parents and practitioners. Leave us feedback about this page.

Was this page helpful?

Was this Helpful? - Feedback

Your input helps us improve the site for parents and practitioners. Leave us feedback about this page.

We're sorry to hear that. How can we do to improve it?

This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.