States Illinois

Program Overview:

While most babies born in the United States are healthy, there are some babies who seem fine at birth but have a serious condition without obvious symptoms. Early detection and treatment may prevent some problems, such as illness, intellectual disability, poor growth or death. That is why every baby needs newborn screening.

Newborn screening has three parts: the blood spot (or heel stick), the hearing screen, and pulse oximetry for heart conditions. An out of range (also called positive) newborn screening result means that your baby may be at risk for one of these disorders. More testing is needed to know if your baby is affected. Work with your baby’s healthcare provider to plan follow-up.

Tips: 

• Ask your baby’s health care provider about newborn screening results.
• Before you leave the hospital, make sure to give them an up-to-date phone number or address so they can find you with any follow-up instructions.
• If you and your baby go home before 24 hours, talk to your baby’s health care provider to plan newborn screening.
• Home births - Work with you and your baby’s healthcare providers to make plans for your baby’s newborn screen.

How is Newborn Screening Paid for in Illinois?

The NBS fee is $128.00 per screen, which covers testing and follow-up. The fee also covers the cost of metabolic formula. The Illinois Department of Public Health bills birthing hospitals or other entities that submit a sample for newborn screening. The Department does not bill private insurance or Medicaid. In the case of home births, or other out of hospital births, the state newborn screening program does bill parents directly. Then the screen is usually paid for out of pocket.