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About Us 2019 Newborn Screening Awareness Month

September is Newborn Screening Awareness Month! Throughout the month of September, Baby's First Test will continue our annual tradition of sharing newborn screening facts, videos, and stories through our Facebook, Twitter, and Instagram channels as well as highlighting education and awareness efforts from communities and organizations across the nation. When you share a post, picture, or story, use #2019NBS to be part of our larger awareness campaign and to join the dialogue! We are excited to continue to support your efforts and expand the reach of newborn screening awareness. 

#2019NBS Social Media Toolkit

To download a PDF of the social media toolkit, click here.

SAMPLE TWEETS/FACEBOOK POSTS Copy the text, personalize it, or add your own photo

  • September is Newborn Screening Awareness Month! To learn more about #newbornscreening and what to expect, visit #2019NBS
  • Looking for educational resources on #newbornscreening? Check out @BabysFirstTest’s resource center here: #2019NBS
  • Not every state screens for the same #newbornscreening conditions. Find out what your state screens for: #2019NBS
  • #Newbornscreening began in the 1960s w/ a screen for #PKU, but today, NBS screens babies for many conditions (~29+). The term “PKU test” is no longer accurate and is confusing for parents. Check out this one-pager to learn more: #2019NBS
  • Nearly 4 million babies receive #newbornscreening each year in the United States: #2019NBS
  • Each year, about 12,500 babies are born with one of the conditions included in state #newbornscreening panels: #2019NBS
  • More than 1 in 300 newborns have a treatable condition through #newbornscreening: #2019NBS
  • 1-3 of every 1,000 babies are born w/ some degree of #hearingloss. To learn more about hearing loss: #2019NBS
  • Did you know about 2 in 1,000 babies born in the United States are affected with Critical Congenital Heart Disease? Learn more here: #2019NBS #CCHD
Educational Resources to Share

Looking for educational resources to share on newborn screening? We have lots of wonderful English and Spanish resources from our team and organizations across the country in our newborn screening resource center, including:

  • Videos
  • Webinars
  • Fact Sheets
  • Educational Tools
  • Posters

TWITTER CHAT  Mark your calendars for Tuesday, September 17th at 2pm ET


  • Post, share, and comment using the hashtag #2019NBS
  • Add the #2019NBS frame to your Facebook profile by following these steps: 1) update your profile picture; 2) click add frame; 3) search for #2019NBS; 4) reposition your profile picture accordingly; and 5) determine how long the frame will be displayed. 
How to Share Your Story

Newborn Screening Awareness Month is a great time to tell your story and raise awareness about newborn screening. Throughout the month, Baby’s First Test will be sharing stories and photos from families and individuals about their personal experiences with newborn screening. These stories will be collected through our Family Experiences page. You can submit your story here.

Other Ways to Share Your Story

  • Use Facebook Live or Instagram Live to share your experience
  • Include a picture with your story and add the hashtag #2019NBS to your Instagram, Facebook, or Twitter posts


  • Include the basics. Who, what, when, and why.
  • Be authentic. Everyone’s experience may be different; tell your truth.
  • Use images or video. Photography is one of the simplest and most powerful ways to tell a story.
  • Choose one story to tell. What’s the goal for telling this particular story story? Remember to tell a story that speaks directly to your goal, and remove any unnecessary details.
  • Keep it short and sweet. Aim for 250 words or less.
  • Include a call-to-action. What’s the goal for telling your story? To raise awareness? To advocate? Make sure to end your story with a call-to-action.

SAMPLE STORY POSTS Copy the text, personalize it, or add your own photo

  • I am part of the #newbornscreening community because I (insert reason, activity or profession)! I'm proud to help babies have healthy lives. #2019NBS
  • September is #NewbornScreening Awareness Month! Newborn screening is important because it gave my child a healthy start! #2019NBS
  • September is #NewbornScreening Awareness Month! Newborn screening is important to me because (insert reason, activity or profession)! #2019NBS
  • My child is 1 of 12,500 newborns each year who is given a 2nd chance because of #newbornscreening! #2019NBS
  • Do you have a #newbornscreening story you would like to share? Submit your story here: #2019NBS
  • Learn from other families, in their own words, what their #newbornscreening journey has been like: #2019NBS
Awareness Month Activities from Our Partners

How are you raising awareness about newborn screening? To let others know what you are doing throughout the month, email

Looking for more specific information?

Find more information about a specific condition or state

Find a condition What your state offers

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