Tasting Tradition: Newborn Screening Around the Dinner Table

Tasting Tradition: Newborn Screening Around the Dinner Table

Public Square #7Published November 03, 2017
The Prompt: 

For many families, one of the most important parts of the holidays is sitting down together for a family meal. Turkey, ham, roast beef, pumpkin pie, mashed potatoes; these are a few seasonal favorites. But for many who have been diagnosed with a condition through newborn screening, traditional recipes for these foods may often be off-limits due to low protein, dairy free, or high fat diets, and other life-saving dietary changes. Though this can be challenging, we know there are plenty of home chefs out there who have cleverly cooked delicious meals everyone can enjoy!

How have you navigated family and cultural traditions during the holiday season or special occasions? Share your stories, tips, tricks, and favorite recipes below!

3 comments
The Question: 
How can individuals with newborn screening conditions and their relatives navigate family and cultural traditions during the holiday season or special occasions?
The Question: 
How can individuals with newborn screening conditions and their relatives navigate family and cultural traditions during the holiday season or special occasions?
Join the conversation. Share your thoughts.
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Adrianna Evans

Welcome to the conversation, everyone! I am Adrianna (Annie) Evans, Program Coordinator on the Baby's First Test Team. I will be the moderator for this public square and I'm so excited to hear everyone's stories, tips, tricks, and recipes! I love cooking and food, so it will be a real treat to hear how the newborn screening community celebrates around the dinner table. We want everyone to feel welcome to share and build a useful resource in this discussion thread, so please join the conversation!

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Ash N John Bricker

There are many blessings in social media and the internet these days that allow those of us who have children with complex diets (my son has MSUD) to find awesome recipes that are safe for our kids. I have an entire Thanksgiving menu planned for my guy thanks to all the resources I’ve found through Facebook. I also have to give credit to the great medical food companies out there who make delicious, trustworthy, safe food for kids like mine. Being able to order my son some of these foods (although pricey, sometimes we splurge!) helps when we are in a pinch. Having access to a diverse selection of foods for him, whether homemade or purchased, is a wonderful thing and promotes inclusion at all levels. I cannot imagine him not being able to sit down at the table with us on Thanksgiving and not have a great meal of his own.

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Adrianna Evans

Hello and thanks for joining the conversation! It's great to hear that you've been able to find so many useful resources. Would you be willing to share either a recipe you plan on making for your son or a resource you've found? Some new parents might be looking for exactly those things to help them prepare for Thanksgiving too!

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