Vermont currently screens for 43 conditions. Each state runs its program differently, for more detailed information please visit their website at http://healthvermont.gov/family/newbornscreening/index.aspx.
Here is a brochure for the state of Vermont. Brochure »
What Conditions are Screened For in Vermont?
Amino Acid Disorders
Fatty Acid Oxidation Disorders
Organic Acid Conditions
About Newborn Screening in Vermont
The Vermont Department of Health's newborn screening program assures infants born in the state are tested for certain conditions for which early identification and treatment will prevent severe disability.
Most tests use a few drops of blood from pricking the baby's heel. If the newborn screening test suggests a problem, your baby's doctor will follow up with your family and will likely recommend further testing. It is very important to follow the physician’s instructions immediately. If the second tests confirm a condition, the doctor may refer you to a specialist for treatment. Following your doctor's treatment plan can save your baby from lifelong health and developmental problems.
The Department of Health provides assistance to hospitals, health care providers, and parents in the implementation of the newborn screening program and will assure that the program operates according to current standards of practice.
How is Newborn Screening Paid for in Vermont?
The newborn screening test is $95.00 per child. The Vermont Department of Health collects this fee to finance the costs of performing the tests, assuring appropriate follow-up, and administering the program.
Policies and Resources
Screening tests are preformed on all newborn infants. However, after being fully informed of the benefits of the tests, the parents, guardians, or custodians may refuse to have the tests performed. While this is highly discouraged, documentation of such refusal shall be sent to the Vermont Department of Health, Vermont Newborn Screening Program.
Support for families:
One of the concerns some families may have when they find out their child has a condition detected through the newborn screening program is the increase in health care cost. Fortunately, Vermont has many laws and programs which have been put in place to make treatment of these conditions more affordable for families who are looking to provide the best care to their loved ones.
If your child has private health insurance, an insurer must cover medically necessary medical foods. Coverage of low protein modified food products are also required for at least $2,500 annually.
The Office of Children With Special Health Needs (CSHN) provides a number of services to Vermont children with complex health needs from birth to age 21. Families are a child’s best caregivers, advocates and decision-makers and CSHN strives to work to provide information, medical services, care coordination and resources to help families support their children’s well being, growth and development. Also, CSHN works very hard to coordinate our efforts with the good work done by children’s primary care physicians. With the family’s permission, we stay in close touch.
CSHN clinic services include a Metabolic Clinic that is specifically for children who are born with hypothyroidism or metabolic diseases such as phenylketonuria (PKU). Clinics are held in Burlington and Rutland. The Rutland location provides services for PKU only. The make up of a particular clinic team will depend upon the specific needs of the children who are being served and the nature of the conditions that are being followed. Depending on the severity of the status of the affected child, the health department may accept children suffering from chronic conditions for treatment. For more information, contact Vermont’s CSHN program.
Storage and Use of Dried Blood Spots:
After your newborn’s blood has been screened for the various inborn conditions, there will remain some blood on the collection card. This is called the “residual dried blood spot”. Vermont will store the residual dried blood spots indefinitely. While in storage, they will not be used for any purposes related to the state DNA data bank or the state DNA database.